09 février 2018 ~ 0 Commentaire

Fetal alcohol syndrome

What Exactly Is Fetal Alcohol as well as what Does It Have To Do With Me?

Etal Alcohol Spectrum Disorder, (FASD) is not a mental health diagnosis or a medical diagnosis but is an umbrella term used to refer to a range of syndromes and disorders that may occur in a young child whose mother consumed alcohol while pregnant. The symptoms and effects vary in severity. Many kids share the usual effects which include emotional, physical and learning difficulties. The typical physical characteristics which can be associated with FASD are facial deformities, growth deficits, liver, heart, kidney defects, vision and hearing problems as well as permanent brain injury. FASD is the only 100% preventable cause of mental retardation and birth defects in the United States and FASD is 100% Nominal. It is projected that FASD impacts 40,000 infants each year. This is over Spinal Bifida, Down Syndrome and Muscular Dystrophy combined.

Alcohol damages the parts of the brain that gives us memory, self control, judgment and planner. Children with FASD often have problems with learning, memory, attention, central nervous system, and problem solving skills that may have lifelong implications. FASD is a permanent condition and impacts every aspect of the child’s life and the life of the loved ones.

The psychological toll on families can’t be underestimated. For birth parents, admitting that their child’s mental retardation, birth defects, and/or neurodevelopment disorders are a consequence of maternal prenatal alcohol intake is very difficult to face. For adoptive or foster parents, discovering that their child suffers from FASD later years of trying to understand his cognitive and behavioral issues contributes to feelings of isolation and frustration.
As an adoptive mother I can tell you raising a child with FASD is the hardest but the most rewarding thing I have ever done. Andrew is currently 13 years old and is in the seventh grade. He’s sweet, generous, loving and very naive. He also has exhibited many of the symptoms associated with FASD because the day we brought him home at 1 week old. He cried all the time! Until he was 3 years old and on medication he never slept for more than 30 minutes at one time, day or night. To say life seemed impossible is actually an understatement. He needed constant attention and should I let him from my sight in a different room for one minute he’d destroy it. When I was not right with him if he had a bowel movement in his diaper he would take it off and smear feces all over the walls, bed and carpets. We needed to put a lock on the refrigerator because he would climb out of his crib in the middle of the night and dump everything from the refrigerator smearing it from the carpeting, walls, and beds. For many years we knew there were severe problems, but nobody can help us. All of the professionals stated that his behaviors were outside of the expertise. We moved from Doctor to Doctor, counsel to counsel and hunted everywhere for answers for him and our loved ones. From the age of three, he had been thrown from every daycare in our region, went through at least 30 babysitters, and couldn’t stay in the nursery at Church. He was very violent toward everybody; however most of his rages were taken out on me. He’d sting me, hit me and throw things at me. He’d put holes in the wall, windows, threw rocks at us, in addition to the automobiles and was essentially never pleased. When he started school a completely new nightmare began. The fourth day of college he’d thrown toys, gears and destroyed the classroom than conducted out of the area causing the teacher to have to leave other pupils to pursue my 4 year old. He had been moved to an emotionally handicapped class where they’d experience with other children like him.

By the time he was 5 he had so many investigations I lost count, but none of them really clarified the seriousness of his behaviors. We had attempted 21 distinct medications and attempted at least 4 different sorts of therapy. We started researching the net and found a couple of websites about FASD and discovered that there have been several areas from the USA that specialized in FASD. Andrew and I packed up, leaving my husband along with other two kids in the home and moved in search of an investigation. We moved to Baltimore, MD and watched a FASD pro that finally gave him an accurate diagnosis of Fetal Alcohol Syndrome. While we finally had a diagnosis nobody seemed able to help us get his behavior in check and his behaviour was becoming worse. At that moment, he was on 7 drugs however none were powerful. We went online searching and studying about FASD and discovered a « severe » conduct practice, The Marcus Institute, in Atlanta GA.. They observed his behaviors and they immediately asked if we would be open to coming to Atlanta to endure a few weeks so he can attend to the clinic. It was their observation that his behaviors were something which would not ever get better without extreme intervention. At this point we had no choice; he had been becoming larger, stronger and more destructive regular. After fighting insurance complications, Andrew and I moved to Atlanta where he failed treatment, testing and training for eight weeks.

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